Disability Rights, and Research Inclusion
February 25 @ 10:00 am - 5:00 pm
Krista James will be speaking on the topic Consent Law, Disability Rights, and Research Inclusion for the ICOI Education and Training Session.
Presentation summary: Participation in research requires consent by a capable adult with legal authority to provide consent for themselves or another person. Older people living with disabilities, including dementia, may wish to participate in research. However, they may face challenges in understanding information relevant to providing consent or bias regarding their ability to understand information. Researchers may find ethics boards tend to prefer substitute consent by younger family members, but substitute consent is not always possible under provincial or territorial laws. These dynamics are particularly common for immigrant older adults who must also navigate language barriers. In this session, Krista James will discuss consent law in Canada and explore best practices in consent to participate in research for older people.