CCEL’s Dementia Advisory Council’s Recommended Reading List

CCEL’s Dementia Advisory Council’s Recommended Reading List

March 11, 2022

BY Jess Fehrenbacher

The following books and articles are recommended by the Canadian Centre for Elder Law’s (CCEL) Dementia Advisory Council (DAC). The DAC helps to guide CCEL’s Engaging People Living with Dementia in Decision-Making Project. The resources address different aspects of journeying with dementia as a person living with dementia and as a family care partner.

Books

• Neglected No More (2021) by André Picard. Speaks to silos in the healthcare system and lack of system integration (Mario recommends).

• Live and Laugh with Dementia: The essential guide to maximizing quality of life (2018) by Lee-Fay Low. Includes information about planning. (Myrna recommends)

• Mayo Clinic on Alzheimer’s Disease and Other dementias (2020) by Jonathan Graff-Radford and Angela M Lunde. (Mario recommends)

• Keep Sharp Book: Build a better brain at any age (2021) by Sanjay Gupta. (Lynn recommends).

• American Dementia: Brain Health in an Unhealthy Society by Dan George and Peter Whitehouse (2021): Societal causes of dementia and what does this mean for brain health in the future? (Mario recommends)

• The Problem of Alzheimer’s by Jason Karlawish (2021): Traces Alzheimer’s from its beginnings to its recognition as a crisis (Mario recommends)

• Outsmarting Alzheimer’s: What you can do to reduce your risk by Kenneth Kosik (2015) gives you 80 simple lifestyle prescriptions in the six key areas with the most scientific evidence for protecting your brain health (Mario recommends)

• Dignity & Dementia: Carpe Diem (2021) by Mary Beth Wighton: invites you to experience life with dementia through the journals of the author (Myrna recommends)

• Dementia Strategies, Tips, and Personal Stories. (2020) Written by our very own Myrna Norman.

News Article:

• Vancouver Sun article (Feb 11, 2022) addressing the issue of home support worker supply and training. (Mario recommends)

Academic Articles recommended by JP:

*Some articles may require log in to an academic institution to access *

• Challenges in involving people living with dementia as study participants in research on  care and services

Author:  M . Lepore et al  (2017 ) Research, paper delivered at the  Summit on Dementia Care 

• Families as “essential” care partners during COVID-19

Author : Candice Kemp   (2020)     Gerontological Society of America – Oxford Press

• Finding the Right Balance: An Evidence-Informed Guidance Document to Support the Re-Opening of Canadian Nursing Homes to Family Caregivers and Visitors During the Coronavirus Disease 2019 Pandemic

Author:  N. Stall et al   (2020)   JAMDA

• Policy Guidance for the Reintegration of Caregivers as Essential Care Partners

Author:   Canadian Patient Safety Institute   CPSI    (2020)

• Supported Decision Making in Dementia Care: Final Project Report

Author:  C. Sinclair et al (2018)    Sydney Cognitive Decline Partnership Centre

• Empowerment for People Living with Dementia: An Integrative Literature Review

Author:  C. Van Corven   (2021)      International Journal of Nursing Studies

• Article in French and Dutch about rights of patients with Alzheimer or related diseases: Les Droits des Patients Atteints de la Maladie d’Alzheimer ou de Maladies Apparentées. Aperçu des Dispositions Légales Influencent la Qualité de Vie.

Author:  Sarah Defloor  et al      (2008)   King Baudouin Foundation, Brussels